Posts on Twitter:

The Kings “Tattad Tattad” The Cut Performance | World of Dance Reaction ABSOLUTELY MY FAVORITE.Go check out my reaction😉 Spoiler: I loved it.❤️




ついに明日!WOD日本予選! 去年からずーっとずーっと 練習してきて頑張ってきた事です! 大好きなmizukiさんと 大好きな皆さんと頑張ります🔥 応援しにきてくれる方 声が枯れるまで叫んでください!笑 宜しくお願い致します! 4月21日 15:00〜startです!













This is the least stressful end to a conf ever! I'm a passenger as fights traffic and drives us home. Should I nap or B a good friend & stay up & chat?




An informative session with the leaders in access and affordability in rare disease... our CEO Jim Lang was honored to lead the conversation at Another great World Orphan Drug Congress!




Can you spot the marvelous from during closing remarks with from - speaking on behalf of and agree this was the best so far!kudos!




Never a dull moment with this girl! How quaint... “DC”.. what else would there be. 😜




What a productive, meaningful and impactful meeting! Looking forward to moving more mountains with the connections made at

Me in a chambray dress standing in front of lifesize letters WODC.



As comes to a close, we're reflecting on a week of engaging content, meaningful conversations, and new connections. It was wonderful to be with so many members of the community in Maryland this year.




A great two days at and an incredibly inspirational panel of parents, fighters, and advocates. I am so proud to know these champions! Collaboration with patients is key across the entire pharma development cycle.




Beverly Harrison, , highlights potential benefits of data collection for patients at World Congress USA




We had a great time at ! Thank you for organizing a fantastic event with a multitude of excellent presentations - we are delighted to see progress in treating .




Lee Schalop presenting at . Speaking about our progress with in H3 K27M-mutant gliomas




Suzann Schiller, Angie Wheeler, and Akash Inti Katakam proud to be at Come along and meet the team at Booth 812







Counting down to the CEO panel discussion at Our CEO Jim Lang is proud to moderate this discussion of innovation and impact!




Today’s the day! folks at join me at 11:40 for my presentation on the financial impact of 1 rare Disease x 2 kids. The cost to is not cheap - but the impact is extraordinary. See u soon! – at Gaylord National Resort & Convention Center




Beautiful things are happing over and next to the right now. I so understand why World Orphan Drug Congress is one of the most loved meetings for . The peeps here are focused to get sh@! done.



Posts on Tumblr: